Of late though, it’s become increasingly clear that I’ve got more and more of my game face on to the world, full stop. I appear to be functioning well outside my home, my colleagues have no idea how much pain I am in on a day to day basis, or how off my head I am on opiate based painkillers (probably for the best that) some of the time. More alarmingly recently was when I discovered that my friends DIDN’T REALISE that I was in pain, all the time. They thought maybe I was a bit achey now and again. One of them told me I should just man up and get on with it, before I told him exactly how much pain I have been for how long. I’ve forgotten how it feels to not be in pain.
They had no idea.
I juggle work and a complicated home life, and I keep going and I am afraid to let my guard down. I can’t let other people see that I am like a swan, gliding along the surface with my flippers going like buggery underneath. I can’t let anyone see, because one of the people I am fooling with this maestro performance is myself. I can’t give up this appearance and let the whole thing go, because if I do, it might start to actually slide. Underneath is a girl desperate to stop, to curl up under a blanket, to sleep and rest and take time for herself, to cry and wail and eat nothing but custard, biscuits and coffee. That can’t happen, so I will continue, as Anna in the King and I, to Whistle a Happy Tune.
Make believe you’re brave
And the trick wil take you far
You can be a brave
As you make believe you are
I guess on some level I am fooling myself too, or perhaps just underestimating how strong I can be in the face of chronic illness. Either way, I don't think my friends understand just how bad things can be for me either. That's a long-winded way of saying I empathize with what you wrote.
ReplyDeleteThis resonated with me as well, H. I don't live with physical pain, but I know emotional pain that leaves me with two options. Show the real me or keep it bottled up until I'm alone and drown. For whatever reason, I prefer bottling it up in most company.
ReplyDeleteI was really struck by this post. I assume that people close to me are able to deduce, from the minimal information that I give, exactly how things really are. Apparently, that's not so! Like you, I'm now having to backtrack and explain things that I thought were obvious!
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